Still Waiting

First off, I was wrong about Ty getting an echo. It was actually an EKG. They said we'd get the results in a week but I highly doubt anything will show amiss. He hasn't had any other episodes since then.

So far his new med regimen is going pretty well. He does say he's tired during the day. I may try him without clonidine in the morning to see how he does. But his tics are starting to get real bad. The doctor says the tics won't harm him as long as it doesn't bother him since he already has them anyways. I kind of want to get a second opinion on this.

I heard from the ABA place last Thursday. He basically said that they were ready to submit their plan to the insurance company for 12 hours a week of therapy. So we need 1) the official approval and 2) to find therapists that can do it. This has been a SUPER long process. Tyler is in dire need of this therapy.....more so socially than anything else.

Tyler has been hugely sensory seeking. Slamming his body into walls, hitting himself and running his body into people, jumping on the trampoline, hanging upside down etc. I feel like the medication is locking it up and it's overflowing so he's kinda slamming it out of his body.

Tyler got approved for our states autism waiver program. Only 80 kids are chosen for the program. And then they had to evaluate him to see if he needed it enough. He was approved and will be able to get a LOT of different things including respite care, someone to help me clean the house once a week, horse back riding therapy, and equipment for the home. Things we are hoping to get are a swing, a better trampoline, a crash mat, 2 weighted blankets, things to sit in and spin and rock in, a bean bag chair and an adaptive stroller for his size.

Anyways. This Friday I have a parent-teacher conference. Very exciting. I did hear from the teachers last week via email. They say he's starting to learn now that he has the medications. He is able to focus better and control his body better. His class has 3 children with autism in it and they have their own aid. But the aid spends most her time with Tyler. I worry if that's fair to the other 2 children.

Anyways. Hopefully getting the ABA therapist in here won't take TO much longer.

-Tylers Mommy