The nurse stated (and I kid you not) "maybe he slept on it wrong". Really??? Seriously??? SLEEP ON YOUR HEART WRONG???? So I had to take her through the history. It was then that she opened his file. The EKG results had not come in. I asked her to please press for it and please tell the Dr. he had pain this morning.
6pm last night the Dr. calls and says Tylers EKG showed a normal heart rhythm however it showed thickening of the left side.
Now...people can tell me left and right not to consult Dr. Google. But. I feel like as a mom, I should be doing as much research as I can. He is MY child and I have to make sure he is taken care of. And what I found was very. very. scary. But I found a lot that isn't scary as well. I read things from heart failure, cardiac arrest to asthma causes and it being normal in kids in general. I ALSO read that EKG's are not considered to be an accurate measure of LVH (left ventricular hypertrophy). It said that mostly, it gives false negatives...BUT....it can also give false positives. So I am going to hold onto that.
So the Dr. said that the cardiologist wants to see Tyler and run some tests. This morning I made the phone call for the appointment. I was worried we'd have to wait until after Thanksgiving. Nope. They got him in for this coming Tuesday morning at 10am. They said it would be a 2 hour appointment and that he HAS to have 2 adults with him, so his uncle is going to come. They asked us to bring asthma medications in if he has them. So I assume they'll have him do some kind of stress tests among others. The Dr. did tell me that the cardiologist wanted to do an ultrasound (echo) of his heart.
So, please keep Tyler in your thoughts and prayers. Pray that the EKG is wrong and that his symptoms are benign. And pray that if there IS something wrong, please pray that it is treatable and that my boy stays strong and healthy and gets through this.
Thank you for all your support. He has been through SO MUCH it is unbelievable. He doesn't deserve all this. He has no clue the severity of what this is all about. I figure we'll cross that bridge with him if we have to, but right now we don't have to.
-Tylers Mommy
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